By Jessica Johnson
March 30, 2010 our Family was blessed with a beautiful 7lb. 9oz. baby boy! When Grant was born his heart rate was around 280 beats per minute. The Doctors told us that all babies are born with higher heart rates. Since I had a very long labor they figured it was from all the trauma Grant went through. They told us they would allow one hour to see if his heart rate dropped. Unfortunately, his heart rate never did drop.
The Doctors contacted Dayton Children’s Medical Center to pick Grant up and since he was stable he was allowed to travel by ambulance. As the squad got there they wheeled him into my room. Seeing his little body in an incubator hooked up to all the different machines and not being able to go with him is one experience that no Mother or Father should have to go through.
The staff that picked him up were some of the kindest people we’ve ever met. They told us exactly what they was going to do and that once he was all settled in his new room they would contact us and that we could contact them at any time to check on him.
So what was supposed to be one of the most joyous days of our lives as new parents, turned into one of the most frightening days. We did not know what the future was to hold for our baby boy.
I have to say as a Mother being wheeled from the hospital two days later without my baby in my arms was one of the most heartbreaking times I have experienced. I couldn’t wait to be by my boys side.
If you have never experienced the NICU it is so sad. Seeing all the sick babies with different health conditions really gets to your heart. The doctors and nurses are absolutely amazing and they made us feel like we were right at home! They helped answer any questions we had. Since we were several hours from home we stayed at the Ronald McDonald house so we didn’t have to travel everyday. The Ronald McDonald House was such a blessing and they are a wonderful organization to support, you never know when you may need them.
Grant was diagnosed with SupraVentricular Tachycardia or SVT. SVT is a rapid heart rhythm of the upper heart chambers. In SVT electrical signals travel from the upper chambers of the heart to the lower chambers of the heart. Usually when a person is in SVT the heart rate remains 150-250 beats per minute but can be slower or faster. When Grant was in SVT his heart rate would usually stay between 250-300 beats per minute. Grant was placed on a medication called Digoxin to help keep his heart in rhythm.
After a week in the NICU our baby boy was able to come home. He was sent home on medication and with a 24 hour heart monitor that he had to wear continuously. It was a very bumpy ride the first 6 months of his life. At 3 months old Grant had been in and out of the Emergency room 8 times. On his last visit to our local hospital they transferred Grant back to Dayton Children’s.
Since Grant’s birth we have had several emergency room visits and hospital stays and countless doctor appointments. As Grant’s Cardiologist has said “Grant is not a text book case, everything Grant should have done all along he’s done the exact opposite”. During everything he had and was going through his Cardiologist, Dr. Ross, stuck by our side and always stayed positive and encouraged us “that we would get through this”. We could not have asked for a better doctor for Grant. Dr. Ross always made us feel like family and would always go above and beyond!
We still do not know what Grant’s future may hold, we just take it day by day. God has been with Grant every step of the way and we know he will continue to be as Grant grows. We’ve also been blessed with amazing family and friends who have been with us every step of the way!